Título Paediatric Multiple Sclerosis: A Scoping Review of Patients\' and Parents\' Perspectives
Autores Luca, Maria , ORTEGA CASTRO, NEREA, Patti, Francesco
Publicación externa No
Medio Child.
Alcance Article
Naturaleza Científica
Cuartil JCR 2
Web https://www.scopus.com/inward/record.uri?eid=2-s2.0-85121856077&doi=10.3390%2fchildren9010011&partnerID=40&md5=cc549af976045ab0ef194e8e298602bb
Fecha de publicacion 01/01/2022
ISI 000758781000001
Scopus Id 2-s2.0-85121856077
DOI 10.3390/children9010011
Abstract Dealing with paediatric-onset multiple sclerosis is particularly challenging for the young patients and their families, due to its unpredictable symptoms and uncertain outcome. This review aimed at synthesising the qualitative evidence regarding the perspectives about paediatric-onset multiple sclerosis, as expressed by the patients and/or their parents. A literature search was conducted on PubMed and CINAHL. The advanced multi-field search allowed to perform an abstract/title search in both databases, using keywords, combined through Boolean operators. Additional search strategies were adopted: searching the reference list of the selected papers; searching for key authors in the field. All the relevant papers were thoroughly revised using The Joanna Briggs Institute\'s data extraction form for qualitative evidence as a guidance. Eight papers were selected. The analysis of these papers allowed to identify some common issues pertaining paediatric-onset multiple sclerosis: (1) onset of symptoms, (2) diagnostic process, (3) reaction to the diagnosis, (4) management and acceptance of multiple sclerosis. The burden of multiple sclerosis was confirmed. However, the young patients and their parents can adjust to the disease. Both the community and the health care professionals must strive to prevent the families dealing with multiple sclerosis from experiencing solitude and rejection.
Palabras clave paediatric multiple sclerosis; patients; parents; perspectives; review
Miembros de la Universidad Loyola

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